Data protection and Confidentiality
The confidentiality of the donor and patient data stored in the Search & Match Service if WMDA is of paramount importance to WMDA and procedures are developed to ensure the data is transferred and stored with the highest possible level of security. In addition to the above, the transfer or storage of confidential donor and patient data must abide by the law in each country. It is your responsibility to ensure that you conform to the data protection policies within your organisation and country. The Search & Match Service has no liability of data that might have been printed or extracted from this site.
As WMDA is registered as a Dutch association, Dutch law applies to Search & Match Service and we abide by the implementation of the European Union (EU) directive (95/46/EC), regulating how personal data is to be handled, through the Dutch application of this law.
The law regulating transfer of data within the EU does not cover countries outside EU/EEA (European Economic Area), and the Search & Match Service must ensure that organisations lying outside this zone agree to conform to the EU law as stated above. The Search & Match Service retains the right to request that organisations lying outside the EU/EEA return the completed European Union Regulations statement on data protection.
The law requires that the donor or patient consents to the data being transferred to the Search & Match Service. It is the responsibility of organisations listing donors and/or cord blood products to ensure that the (maternal) donor has consented before data is submitted to WMDA. Users searching for potential stem cell sources are responsible for obtaining patient’s consent for data transfer to WMDA.
Data submission is only possible in the secured part of WMDA which is only accessible for authorised users. Personal information is not stored in the Search & Match Service. Each donor or cord blood product listed in the Search & Match Service can only be identified by an ID assigned by the organization listing the donor.
Patient information registered in the Search & Match Service includes at least a recipient ID and the HLA from the patient. Other information can be submitted to this secured part of the website, but is not required. This information is only accessible for authorised users within the organisation that has registered the patient details.